World Neurofibromatosis (NF) Awareness Day

Proclamations
Posted on May 1, 2017

Proclamation

By the Governor of Alabama

WHEREAS, The Children’s Tumor Foundation is observing May 17, 2017 as World Neurofibromatosis (NF) Awareness Day to educate the public about this rare genetic disorder; and

WHEREAS, although over 2 million people around the world are living with NF and 1 in every 3,000 births is diagnosed with NF, it is still relatively unknown to the public; and

WHEREAS, NF affects all populations equally, regardless of race, ethnicity or gender; and

WHEREAS, NF causes tumors to grow on nerves throughout the body and also can affect development of the brain, cardiovascular system, bones and skin; and

WHEREAS, the disorder can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer; and

WHEREAS, The Children’s Tumor Foundation leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and, ultimately, a cure for NF; and

WHEREAS, The Children’s Tumor Foundation is actively fostering collaborative partnerships in both science and industry to speed the drug research and development process through a number of consortia called Synodos; and

WHEREAS, The Children’s Tumor Foundation works to improve access to quality patient healthcare through its national NF Clinic Network; and

WHEREAS, The Children’s Tumor Foundation provides patient and family support through its information resources, youth programs, and local chapter activities; and

WHEREAS, much remains to be done in raising public awareness of NF to help promote early diagnosis, proper management and treatment, prevention of complications, and support for research:

NOW, THEREFORE, I, Kay Ivey, Governor of Alabama, do hereby proclaim May 17, 2017, as

World Neurofibromatosis (NF) Awareness Day

in the State of Alabama.

Given Under My Hand and the Great Seal of the Office of the Governor at the State Capitol in the City of Montgomery on the 1st day of May 2017.

Kay Ivey

Governor